About Us
Huntington's Disease (HD) is a hereditary disorder of the central nervous system. Its effect on families can be devastating and cuts across generations.
Based in Liverpool, the Huntington's Disease Association (HDA) is a national organisation offering help, support and advice to those affected by the disease, including children and young people growing up with HD in their family.
Its network of Specialist HD Advisors (SHDAs) are all qualified health or social care professionals, and are dedicated to helping people manage their symptoms positively. They are the main point of contact for families, providing a telephone help line from 9am-5pm Monday to Friday, visiting them in their homes and accompanying them to clinic appointments.
Incidence of HD is relatively low and healthcare professionals often do not understand the complexity of the disease, so the HDA provides training for staff at nursing and residential care homes and issues guides about HD to GPs and Primary Health Care Teams.
Press releases
Huntington’s Disease Charity Reports Sharp Increase in Referrals
A charity that helps families affected by Huntington's disease reports a sharp increase in the number of referrals it receives from Social... read more
27.07.2015 • By Huntington's Disease Association
